Symposium Maastricht 2008 - Introduction
This is the original introduction text of the symposium plus the information of the CKP and the EMP taken from the original "General Information" text.
Aim of the Symposium
The aim of the Symposium is to demonstrate the influence of patient organisations on the formulation of health policies at national and European levels, using the 25 years of experience of the CKP. Recommendations for the future role of patient organisations will be formulated.
The programme of the Symposium
The programme will focus on: The current role of patient organisations; the participation of patient organisations in the development of new treatments and medications; the participation of patient organisations in making medications and treatments available; their participation in the provision of the adequate information for patients; the need for European patient networks. Panel discussions are planned between the sessions.
The Symposium is intended for representatives of the following national and European target groups:
- Patients; patient organisations; patient-support institutions;
- physicians; nurses, health policy makers and related professionals;
- politicians such as EU members of parliament and
- representatives of industry/pharmaceutical companies.
The outcome of the Symposium
On the day after the Symposium (Oct. 31) the results of the Symposium will be discussed and documented during a round table conference. Short- and long-term aims for European and national patient organisations will be determined. A workplan will be formulated.
The round table conference will be chaired by Mr. Francois Houyez, Health Policy Officer, European Organisation for Rare Diseases (EURORDIS). Participants to this round table conference will be representatives of all stakeholders. Participants will be on invitation only.
Organisation information
CKP
The MM&WM Patient Association, the Netherlands (CKP), was founded in 1983. CKP is an association for patients with Multiple Myeloma and Waldenström’s Macroglobulinaemia. Their aim is to care for patient interests by organizing patient support groups, give information about the illnesses, stimulate research and provide patient advocacy.
For more information see information on this website.
Or contact:
CKP
Bloemstede 164
3608 Maarssen,
The Netherlands
Tel.: +31 (0) 346 - 56 40 32
EMP
The European Myeloma Platform (EMP) was founded in 2006. The initiative to found EMP was taken by Multiple Myeloma patient representatives from 6 different countries: Austria, Belgium, Denmark, France, the Netherlands and Switzerland.
EMP is independent of political or commercial influences. It is an independent all-patient Myeloma network to bring their common interests to the attention of European policy makers and the public.
For more information see: www.emp-myeloma.eu
Or contact:
Office EMP ivwz,
Laarbeeklaan 101,
1090 Brussels,
Belgium.
Tel: +32 (0) 2 476 31 06