Presentations European Symposium ‘no policy without patients’

Underneath you find the program of the symposium at the 30th of october 2008. With the speakers of which we received a presentation or speech you find a red link to a pdf file.

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Session 1. Current role of the patient organisation; an example from practice.

10.15- 10.30 | Experiences of a patient organisation at the national level Presentation: Experiences of a patient organisation at the national level Dr. P. Wijermans (Netherlands), Haematologist, Medical Advisor CKP; MAB EMP

10.30- 10.45 | Experiences of a patient organisation at the European level Presentation: Current role of the patient organisation - Experience on European level P. Randlov, (Denmark), MM patient, Board of Directors EMP

Session 2. Participation of patient organisations in the development of new treatments and medications

10.45- 11.05 | New developments in treatment of MM and WM: the role of patient organisations
Prof. H. Einsele (Germany), Haematologist, University of Würzburg, MAB EMP

Coffee break

11.35- 11.55 | Patient participation in clinical trials Presentation: Patients Participation in Clinical Trials D. De Schrijver (Belgium), Director Community Affairs, Tibotec bvba

Session 3. Participation of patient organisations in making medications and treatments available

11.55-12.15 | Relevant policies in making medications and treatment available:
the role of patient organisations
Dr. N. Wathion (Belgium/UK), Head of Post-Authorisation Unit Evaluation of Medicines for Human Use, European Medicines Agency (EMEA)

12.15-12.35 | The role of patient organizations in health politics Speech of Prof Georgs Andrejevs Prof. Georg Andrejevs, (Latvia), Member of the European Parliament

12.35-13.00 | Panel discussion
Panel chair: Prof. dr. B. van Camp
Panel: speakers, session chairs and co-chairs

Lunch break

Session 4. Participation of patient organisations in informing the patient

14.15-14.30 | Information needed Presentation: Participation of Patient Organisations in informing the patient Dr. R. Pelzing (Germany), MM patient, EMP member
www.plasmozytom.net

14.30-14.50 | Different ways to produce information for the patiënt Presentation: Different ways to produce information for patients Mrs. C. Honing (Netherlands), Chair European Cancer Leagues, Board member Dutch Cancer Society

Session 5. The need for European Patient networks

14.50-15.10 | Who, What, Where, When, How?
Dr. Gerlind Bode, Germany

Tea break

15.40- 16.00 | Democracy of patient advocacy Presentation: Democracy of patient advocacy Prof. P. Huijgens (Netherlands), Hematologist, Free University Amsterdam, chairman HOVON

16.00-17.00 | Overall discussion and conclusion of the day
Chaired by Prof. dr. E. Borst and Prof. dr. B. van Camp, chairpersons of the day
Panel: speakers, session chairs and co-chairs.

Drinks, in honour of the 25th anniversary of the CKP, will be served to conclude the Symposium

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